I have not posted on here in a while! In case you have not heard, I received a kidney on May 23rd!! A generous family from my church donated their young son’s kidney to me amidst there grief. It has been a little over a month since I received my kidney. I am excited to say I can eat anything I want now. One of my prescriptions was actually salt!! My BP is too low, so I have to eat salty foods. Well, anyway, I am doing great and get back on updating this blog. I am also changing the name since I am not longer a dialysis patient!!!
Today I got some sad news and was reminded that the road ahead is never easy or fair. I was told my mother will not be able to donate a kidney to me due to some medical issues that was found during her most recent CT scan. Please pray for my mom as she deals with this news and for me as I start the search for a new donor.
-Kevin & Linda (Mom)
We officially have a date for my surgery!!
It is official! I have a kidney donor, my mom. She is healthy enough to give me one of her kidneys!! We will have an official date for the surgery soon. Will let you know what it is later.
- 104,748 U.S. patients are currently waiting for an organ transplant; more than 4,000 new patients are added to the waiting list each month.
- Every day, 18 people die while waiting for a transplant of a vital organ, such as a heart, liver, kidney, pancreas, lung or bone marrow.
- Because of the lack of available donors in this country, 4,573 kidney patients, 1,506 liver patients, 371 heart patients and 234 lung patients died in 2008 while waiting for life-saving organ transplants.
- Nearly 10 percent of the patients currently waiting for heart transplants are young people under 18 years of age.
- Acceptable organ donors can range in age from newborn to 65 years or more. People who are 65 years of age or older may be acceptable donors, particularly of corneas, skin, bone and for total body donation.
- An estimated 12,000 people who die each year meet the criteria for organ donation, but less than half of that number become actual organ donors.
- Donor organs are matched to waiting recipients by a national computer registry, called the National Organ Procurement and Transplantation Network (OPTN). This computer registry is operated by an organization known as the United Network for Organ Sharing (UNOS), which is located in Richmond, Virginia.
- Currently there are 58 organ procurement organizations (OPOs) across the country, which provide organ procurement services to 250 transplant centers.
- All hospitals are required by law to have a “Required Referral” system in place. Under this system, the hospital must notify the local Organ Procurement Organization (OPO) of all patient deaths. If the OPO determines that organ and/or tissue donation is appropriate in a particular case, they will have a representative contact the deceased patient’s family to offer them the option of donating their loved one’s organs and tissues.
- By signing a Uniform Donor Card, an individual indicates his or her wish to be a donor. However, at the time of death, the person’s next-of-kin will still be asked to sign a consent form for donation. It is important for people who wish to be organ and tissue donors to tell their family about this decision so that their wishes will be honored at the time of death.
- All costs related to the donation of organs and tissues are paid for by the donor program. A family who receives a bill by mistake should contact the hospital or procurement agency immediately.
- Tissue donation can enhance the lives of more than 50 people. Donated heart valves, bone, skin, corneas and connective tissues can be used in vital medical procedures such as heart valve replacements, limb reconstruction following tumor surgery, hip and knee joint reconstruction and in correcting curvature of the spine.
- In 2008, a total of 14,208 organ donors were recovered in the U.S. Of these, 7,990 were cadaveric donors, which represented a decrease over the total of 8,019 in 2006. Living donors decreased from 6,732 in 2006 to 6,218 in 2008.
- Donor organs and tissues are removed surgically, and the donor’s body is closed, as in any surgery. There are no outward signs of organ donation and open casket funerals are still possible.
- Acceptable organ donors are those who are “brain dead” (whose brain function has ceased permanently) but whose heart and lungs continue to function with the use of ventilators. Brain dead is a legal definition of death.
- Organ transplant recipients are selected on the basis of medical urgency, as well as compatibility of body size and blood chemistries, and not race, sex or creed.
- Advances in surgical technique and organ preservation and the development of more effective drugs to prevent rejection have improved the success rates of all types of organ and tissue transplants.
- About 94.4 percent of the kidneys transplanted from cadavers (persons who died recently) are still functioning well at one year after surgery.
- The results are even better for kidneys transplanted from living donors. One year after surgery, 97.96 percent of these kidneys were still functioning well.
- Following are one-year patient and organ graft survival rates: Organ Patient
- Following is a comparison of the numbers of organ transplants done in 2008 and the numbers of individuals who are on the national waiting list as of November 2009.
- Of the 13,156 single kidney transplants performed in 2008, 5,968 were from living donors and the rest were from cadaveric donors. In addition, 837 kidneys were transplanted in combination with pancreas transplants.
- Over 2,500 bone marrow transplants were performed in the U.S. in 2004. Marrow is collected from a pelvic bone using a special needle while the volunteer donor is under anesthesia. The majority of bone marrow transplants are done for leukemia.
- In the United States fewer than 2.5% of patients with end-stage kidney disease undergo transplantation as their first treatment or therapy. The National Kidney Foundation is dedicated to educating kidney patients about the benefits of pre-emptive transplantation - when a person is able to go straight to transplant without dialysis they usually have good health outcomes.
- 2008 was the first time in 20 years that there was a decline in the number of deceased donors used for transplants. Living donors in 2008 were at their lowest numbers since 2001.
- Virtually all religious denominations approve of organ and tissue donation as representing the highest humanitarian ideals and the ultimate charitable act.
Survival Rate Graft
Survival Rate Kidney (cadaveric)
Kidney (live donor)
Organ Number of
Transplants in 2008 Number of Patients
on Waiting List*
(of November 2009) Kidney
Exciting news!! My mom passed her kidney function test. Now she has one last appointment with a cardiologist to get the all clear for the donation. That appointment is the 21st.